The past couple of weeks has been crazzzzzy!
I have been very sick, too sick to write here even when I had the words running around in my head. Too sick to get otu of bed, and in soo much pain in my hands and feet it brought me to tears. I wanted to do a long (read: whiney) post about the utter pain and misery i was in. I had so much hate towards my old doctor for not treating me months ago when this flareup began. After years of fighting for a diagnosis i was so angry i had to fight for my treatment as well.
Dispite all this i did also have hope, the most preacious thing with chronic illness is hope. Mum and I had agreed tpo go to see the first doctor we saw about my problems 8 years ago, we knew he wouldn't stand around and do nothing if there was anything he could do. Had the appointment with him almost a week ago and he put me straight onto a short tapering course of cortisone (starting at 30mg down to 5mg).
I think i could have cried with relief for once, finally something was actually being done! I felt like i was not only being listened to but also taken seriously. The first 3 or 4 days of this treatment has been amazing. I have been out almost every day, sleeping better, my blood sugar control has improved (wierd but true, he has some other interesting theories there), i have been cleaning like a mad thing, and have been able to THINK again! I even go to have friends over a couple of times, and not needing naps during the day.
I may have been too optimistic, thinking "ooh at this rate i'll be able to make it to at least one of those parties this weekend!", but yesteday I drtopped down to 10mg with noticeable affects. Today I am in a major deal of pain, lower energy, and annoyingly hungry! I am starting to feel like I wont be going anywhere this weekend.
Another weird side note, i have found when i am very sick i become TERRIBLE with money!!! I couldn't wait to save up for an iPad so i asked mum and dad to help buy it for me so i could have it straight away, which isn't like me at all. Even now i feel 'wanty' but not sure what *for*....maybe snacks.....but all my money is gone right now....my brother beast and i have been having fun with my energy and going shopping :P
For this post I get 150points because i have been wanting to post all week! I guess you can have 10 points too :P
It's been such a relief to see Dr Rob, and get you some EFFECTIVE treatment at last. And so good to see you functioning more normally for the first time in AGES.
ReplyDeleteThe effectiveness of the Prednisolone will give the doctors more evidence and information as how best to treat your crap long term (as we all know long-term Pred use is problematic).
Woo! 10 points! Am i up to 160 now?
yeah unless you cashed in points for that griff picture....which you took o3o....ill need mum specific prizes i think :P
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